Meet Portia Combow, who has battled Hidradenitis Suppurativa (HS) for nearly two decades. Portia has been generous enough to share her experiences around the stigma, her long journey to diagnosis, as well as her own discovery of disease management strategies. 

At Thalocan we work to improve the process of disease assessment in clinical research, the patient experience informs all aspects of what we do. The greater goal is to drive improved outcomes for patients by supporting the development of much needed, new therapies. Few conditions present the research challenge that HS does, so it is easy to be passionate about solutions for this often misunderstood and stigmatized condition.

We are grateful to Portia for sharing her first hand account of the patient’s obstacles and for helping to increase awareness and understanding at this critical point in HS research.